My seven year-old has the cutest smile- missing teeth and all.
He has fabulous hair(that NO, Hubs cannot get cut!).
He gives the best hugs.
And oh, how he loves his mama.
He’s grown so much this year.
We started seeing huge differences in him at home and his teachers saw the same at school. Our doctor suggested we have him reevaluated by an autism program around here. I filled out the parent surveys six months ago, realizing just how different my answers were from when I filled them out the year before. Dramatically different.
Time past and we didn’t hear anything from the program. I didn’t press it because they had said it would take time and honestly, since he was doing so well at home and school(we had an AMAZING IEP meeting), I didn’t really see a rush for any other testing. He was getting the support he needed and a new diagnosis or a confirmation of the previous one, wasn’t going to change anything(none of the services he receives currently are a result of a PDD-NOS diagnosis, but because of other factors).
But two weeks ago, we got notice that it was almost his turn for his reevaluation.
Tuesday, one of the workers in the program gave me a call to ensure we would be at the appointment and to ask a few questions about progress since the paperwork she was reviewing had been filled out.
I talked about the huge difference since he went on medication for his ADHD. I had never really realized before that there’s a spectrum for ADHD(usually I just heard that term associated with autism). And while there are some kids who only have mild ADHD, my son had holy-shit ADHD(I think that’s the technical term). Previously, we’d been led to believe that ADHD was just one of the issues he was dealing with, but not the biggest concern. But on the medication, the majority of the behaviors that were a concern were under control. He still needed OT and speech therapy, but there was still such huge improvements in everything else.
The worker asked me if I thought that maybe all he had was ADHD and that the PDD-NOS(an autism spectrum disorder, for those of you not used to the alphabet associated with special needs) was a misdiagnosis. Did I see any other behaviors that were a concern.
I took a deep breath, considering how to phrase it.
He’s still… big pause… a little bit quirky.
If you see him in a group of his peers, you’ll notice there’s something different about him. You might not be able to figure out what it is. And before, it used to be a flashing neon arrow above his head, singling him out as being different, but now, it takes more careful observation to see it. But there’s still something there.
It’s not that I had hoped his autism was “cured”(I really don’t think that’s something that can happen), but there was always the thought in my mind that it could just be a misdiagnosis. Especially since he had lead poisoning- the effects of which can sound an awful lot like autism. And his holy-shit level of ADHD, too. So maybe it’s not an autism spectrum disorder after all.
But I know there’s still something there.
On Wednesday, he and I will spend all day getting his reeval done, break for lunch, and then come back to hear the results.
Part of me thinks that there could be a change.
Part of me thinks there won’t be.
But the biggest part of me?
Doesn’t give a damn.
My sweet Little Bear is doing great. There are still rough times, but he’s showing so much improvement. He’s getting the help he needs. So at this point, I don’t think a change in diagnosis would make any difference.
And I will remind myself of this as we go through the evaluation process this Wednesday.
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