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April 7, 2015 by: Shell

Feelings Are What They Are

I saw the panic flicker in her eyes as she frantically searched the paperwork in front of her, searching for something she’d clearly missed.

My son’s second grade teacher is the type of teacher you want your kids to have. She’s awesome at what she does, she’s great with the kids, and she genuinely gets excited over the progress the kids make.

She’s stopped me in the hall or pulled me aside when I’m in her room to volunteer to share great news about my son. If I don’t have a scheduled conference, I don’t expect that. But, it’s how she is. And I love it.

And yet, even as amazing as she is, there was something important she missed about my son. Not her fault, but she didn’t know. I hadn’t brought it up at the very start of the year, assuming his paperwork would speak for him and since he’s improved so much since first starting school years ago, I no longer felt it necessary to have a conference before the school year began.

When we did have our first conference, two months into the school year, she shared how great he was doing academically and how pleased she was with his progress, her only concern being that even though his time with the special needs teacher had been cut down to just 30 minutes a day, it might still be too much and he might be better off with even less. Which was the good kind of concern to have. I’d already talked informally with her several times by this point, so I was already pretty well aware of what she was going to tell me.

Working hard in second grade.

Working hard in second grade.

As we were wrapping up the conference, I asked if he was making any friends in class and who he plays with on the playground. Questions I ask him, but he’s never been great with names and unless there’s someone to constantly reinforce a name to him, it won’t stick with him. So, without many names, it’s hard to get a clear picture of how he’s doing socially. And he does struggle with reading social cues and understanding appropriate social interaction. He could think everything is fine when it’s not, though he had told me that he felt like he fit in.

His teacher told me that he tends to play more with the girls than the boys, but that yeah, he’s liked. And that some kids are just more introverted than others.

Oh, believe me, I know all about introverted.

But I could tell from her breezy tone that she wasn’t really understanding my concern. So I prompted “You know, with his PDD-NOS….being on the autism spectrum… he can have a harder time socially….”

And that was when I saw that flicker of panic in her eyes, as she searched his paperwork for what she’d missed.

Though, it’s not front and center in his file. Any services he’s received have fallen under the category of OHI (Other Health Impaired, which included his ADHD), so while there’s evaluation results in there that my son is on the autism spectrum, it wouldn’t have been something that jumped out at her.

And this tiny part of me that I don’t like very much made my heart leap in excitement and think she didn’t know, she wouldn’t have guessed, she didn’t have a concern, she just thought he was doing awesome, she didn’t see him as different. 

I left the conference a few minutes later and walked slowly down the hall, trying to figure out exactly what I was feeling.

It’s not that I try to hide that my son is on the autism spectrum. It’s part of him.

Then again, I don’t tell every single person who encounters him about it, only if they have a reason they need to know(usually I DO have a discussion with his teacher- that was an oversight on my part). I don’t include his diagnosis in every post I write or story I tell about him or even in most of them. Only if I’m talking specifically about something that relates to autism and while you could argue that everything does because he is autistic… sometimes it’s more about a little boy or parenting in general, than about special needs.

I’m not a good autism advocate, I admit this. An advocate for my boys, absolutely, but not a spokesperson for the cause. Sometimes that’s caused me a little guilt because I know so many other moms who do a fantastic job with this. But then I get busy with something else and I don’t feel guilty simply because I’m not taking the time to think about it, I’m just thinking about my family. Call it selfish, I’ll call it parenting.

And it’s Autism Awareness Month, which some call Autism Acceptance Month… and what does my reaction to his teacher not knowing say? That I wish he wouldn’t be seen as different? That I wish people could just see the good in my son?

I can say that I honestly feel like I’m not just autism aware but I’m in the autism acceptance camp… but that doesn’t mean that I can’t have fleeting thoughts of wishing my son had an easier route.

Wouldn’t it be nice if I could tie up this story with a pretty bow and tell you how I learned some big, huge lesson from all this? I have no ribbon for that bow because sometimes feelings just are what they are. 

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Comments

  1. Diana says

    April 8, 2015 at 12:50 pm

    It is wonderful to hear that your son is doing so well. My 4th grader started the year with a ADHD diagnosis, but now has earned the PDD-NOS with the OHI as well. He does have at least one friend which is nice. If they were still using the former system I would describe him as Asperger’s. (Forgive my spelling, my boys have Spring Break this week). I don’t try to hide his diagnosis either, but am thrilled when someone doesn’t realize it as that means he is fitting in well. Yeah.

  2. Lauren says

    April 8, 2015 at 1:33 pm

    No need for a bow at the end! It’s perfectly honest and I love that. I don’t have a child with Autism but I imagine I would feel the same as you did to know that his teacher didn’t even notice. It sounds like he is doing great! That’s a bow all in itself!

  3. lisa at two bears farm says

    April 8, 2015 at 8:22 pm

    I hear you. I always advocate for my son but I don’t advocate from the rooftops….mostly because he is a great kid as he is. Also, he knows his diagnosis and is encouraged to tell people if he wants them to know.

  4. Julia says

    April 9, 2015 at 6:48 am

    I think you do a great job on your blog of speaking out and advocating when you feel like you should and I think that’s part of it, saying and doing things when it feels right to you. I’m glad things are going so well for him 🙂

  5. Tracy Gibb says

    April 9, 2015 at 9:20 am

    My son is legally blind and I can tell you right now, the teachers don’t read the 504 write ups. From kindergarten to high school, ONE teacher actually found the info on their own and it’s only because he was a former special ed teacher. I learned the hard way that I had to point it out to them to make sure they were aware of my son’s special needs. I usually just shoot out a nice little e-mail as an FYI in the beginning of the year.

    Good luck! 🙂

    • Shell says

      April 9, 2015 at 9:40 am

      Every year before this, I’ve had a conference before school started. And she was aware of his ADHD (what he gets services for), but his PDD-NOS is just a small blip in his file since he doesn’t get any related services. Totally on me that I didn’t bring it up.

  6. Emmy says

    April 9, 2015 at 10:16 am

    That is so wonderful that she didn’t even realize, shows how well he is doing! And you know, I don’t think we always need to champion every cause at every minute, we really just need to live our lives and care for our children, sometimes, in fact most times that is enough.

  7. Jill says

    April 10, 2015 at 7:57 am

    That’s awesome he’s doing so well. I understand completely what you are saying about being a bad advocate. My kids have some issues, too, and while I think…I hope…I am doing all right advocating for them, I don’t think I’m that big voice. It must be an introvert thing : )

  8. Sisters From Another Mister says

    April 12, 2015 at 7:15 am

    I loved this Shell, and just wanted to jump in and hug you … you know right after i wiped away my tears xxxx

  9. julie gardner says

    April 13, 2015 at 2:51 pm

    The title of this post says it all: feelings are what they are.
    No apologies, just honesty – which is what you’ve always embraced here.

    So I’ll admit I’m happy for you. And for him.
    Because that’s honest.

    I hope his year continues to be wonderful.

  10. Rosemary Nickerson says

    April 17, 2015 at 3:59 pm

    It was November of the year my daughter was in grade seven. The teacher had great things to say to us about hoe she was doing but he mentioned his mild annoyance with how social she was. Social??? Yes, she chatted up her friends in class. Friends?????? That’s the best news I’de ever heard at parent-teacher conference. She usually never knew names of any kids in class and barely knew her teachers names. He hadn’t read the file either. It was a good thing. Let the kids stand up for themselves until they need help and then go all out. You are doing a great job with your family. Who says you have to take on the whole world?

Welcome to Things I Can't Say: Tips and Tales from an Introverted Mom. I'm Shell. Boy mom, beach girl, bookworm, ball games, baker, brand ambassador, Thinking yoga, food, and travel should start with "b," too. Finding the easiest way to do some things while overthinking so many others. Read More…

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